pictured words

a simple pairing of pictures and poetry

Tag: Blepharospasms

THE VIEW FROM HER EYES

My stunningly beautiful daughter. Photo by Steve Gertz

She sees through eyes that close,
that nobody knows how to fix.
And politics says there aren’t
enough of her to fund a cure. 

At one time, she was functionally blind;
mostly confined to her bed and
stuck inside her unwell head.

And though she tries,
it’s hard to be strong
when you long for the life
you once viewed as fate,
but now fear is too late.
 
She has multiple diagnoses.
Some fell away. Some chose to stay.
They, the predator.  She, the prey.

© Marie Elena Good, 2024

#mentalillness
#schizoaffective
#multiplepersonalitydisorder
#lymedisease
#anaplasmosis
#blepharospasm
#meigesyndrome

BRIGHT AS DAY

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It’s the meaning of her name,
and I claim there is something to it,
as in days of old testament.

But multiple impediments seized her

mind

energy

sight

voice.

Her very soul.

The whole of her,
splintered.

The light of her,
wintered.

But her God is not flawed,
nor silenced.
As her spirit returns
and yearns to be,
I see her flame ignite,
and hope shines
Bright as Day.

© Marie Elena Good, 2019